Saturday, November 12, 2011

To Wait For Research or Not?

One very common thread that comes up frequently when any supplement is talked about for Down Syndrome is whether it has been researched specifically in people with DS. A placebo controlled clinical trial is almost always brought up.

I agree that it would be very nice if there was a clinical trial specifically for Nutrivene-D and people with Down Syndrome, Longvida Curcumin and people with Down Syndrome, etc. But, there is not.

There is a ton of research that supports the use of the nutrients in Nutrivene-D for people with DS. Personally, that's enough research for me. To see that such and such supplement helps make people with DS not deficient in it, I am going to give it.

That's why Nutrivene-D is here. Nutrivene-D follows the newest research for DS and also the feedback from families who use it and the formula is changed accordingly. New ingredients are added, the dosage of ingredients are changed, some ingredients are even taken out at times.  Giving Nutrivene-D (NTV) saves a lot of time, and even money. Otherwise, someone may be giving a whole cupboard full of each individual component which is already in NTV. Some may have to do that, if their child is sensitive to various supplements, but NTV regular formula and custom formulas work for most people.

There is a massive amount of research on the use of Curcumin in patients with Alzheimer's Disease (AD) and all sorts of other health concerns. All you have to do with this, is the same as NTV. Put two-and-two together. When you do that, you realize that if this particular problem is present in DS, and also present in AD, and supplementation helps this problem in AD, it should also help the problem in DS. So, why not give it?

And so, since there is not a placebo controlled clinical trial on NTV or Longvida Curcumin for DS, does it mean we should not supplement with it? The same problems present in DS are present in other research studies done with Curcumin and other supplements in people with DS, AD, and the general population. The research studies show it is helpful, so how is it going to hurt the person with DS because there is not a specific study done on this population?

The research is overwhelming that has been done on Down Syndrome and supplementation with various supplements. And also on Longvida Curcumin and patients with AD.

The reports from thousands of families sharing the benefits of using targeted nutritional intervention (TNI) with their child with DS is massive. There is even a plethora of feedback from families using Longvida Curcumin with their child.

So, what are we to do? Sit back and wait until there is a clinical trial done specifically in Down syndrome?

For us, the answer is obvious. No, we will not sit back and wait. I view it as a very important issue and one that doesn't have time to wait. We're talking about waiting to see if we should give something to my brother that has the potential to greatly help his health and his brain! It's my brother's life we're dealing with. His life and well being would be put on the line if we are to wait for research.

I praise God that we did not wait for research on NTV. God greatly used NTV to help my brother. I seriously wonder how he would be if we did not start him on NTV. At the course he was going, he would not be thriving well in his health at all. But, today, he is a different child. He is a healthy, active, smart, happy little boy.

To this day, 6 years since we started NTV, there is still no clinical trial done on it. And I see that as a very likely situation with Longvida Curcumin. Doctors involved in TNI have tried to get clinical trials done and it doesn't happen, because most people are not interesting in making this happen, sadly.

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