Friday, June 17, 2011

A visitor

Yesterday we had a family come by for a visit from Thailand. They are teachers in Thailand and were here for the summer visiting family. I've emailed this family off and on for the past couple months and we met originally via the Einstein-Syndrome listserv.

This family's little girl with Down syndrome is just 3 months old. She was so adorable and was doing so well! Her tone was great and she was very aware of her surroundings.

The family wanted to come by our place just to talk about Down syndrome, see how O is, because he's quite a few years older than their little one, and ask questions about what they can do for their little girl.

They are blessed to be able to have found out all that they have when their little girl is so young. She's been on Nutrivene since she was about a month/month and a half and they are slowly adding other supplements.

It was very nice to be able to talk with them about all that we've learned over the years. All that we've done with O. How we have done things with him. Everything from nutrition, to blood work, to therapy (speech, occupational, physical, etc). After they left, I thought of so many more things I could've shared with them!

When they left, I sent them with a copy of our book, since they only had the eBook. I'm very thankful that God has given us the ability to research so much and learn so much to be able to be in the position to help new families of kids with Down syndrome.

It's helpful to new families in so many ways. Even in just the simple fact of seeing O and how he is living a pretty normal life and doing well, all by the grace of God. When you're given such a "doom & gloom" prospect after the initial diagnosis of Down syndrome, it's nice to be able to see older babies, toddlers & kids with Down syndrome and how they are doing. It's encouraging, as the family who was over yesterday said.



Jenna said...

My name is Jenna and i came across your site. Wow u have a big family compared to mine, it is just my mom, dad and I. So u are very lucky to have so many brother's and sister's, as I have always wanted a sibling. Ur brother who has down syndrome, is an inspirational hero. I was born with a rare life threatening disease and have developemental delays. I am what they call a self advocate. I love it when others sign my guestbook.

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